Become an Empowered Advocate
Welcome! My name is Khrystal K. Davis and I want to personally welcome you to my website KhrystalKDavis.com.
When doctors diagnosed our newborn Hunter with Spinal Muscular Atrophy (SMA), a rare disease and terminal illness, doctors told us there was no hope. This broke our hearts into a million pieces. Rather than live without hope, we chose to embrace Hunter’s rare disease adventure. We learned how to help Hunter and created hope where there was none. In doing this, I became an empowered advocate for Hunter.
I now help those with rare diseases and their caregivers become empowered advocates as well. You too can move from hopelessness when you become an empowered advocate in your rare disease adventure.
If you have experienced or are experiencing hopelessness, grief, or anger and want to take control of your rare disease adventure, then you are in the right place. Think of me as your ‘Rare Disease Guide.’
Here at KhrystalKDavis.com I show people who are living with a rare disease diagnosis:
- Simple and effective ways to become an empowered advocate
- How to embrace your rare disease adventure to achieve the best possible outcome
- Highly effective strategies to communicate with doctors and other essential medical staff so you can become an important member of your care team
- How to learn from others who share similar adventures
- And much, much more…